Impaired expectations: the challenge of ableism in paediatrics

Elsevier, The Lancet Child and Adolescent Health, Volume , 2025
Authors: 
P.T., Church, Paige Terrien, R., Banihani, Rudaina, A.R.L., Rule, Amy R.L., D.B., Frumberg, David B., J.S., Maypole, John S., A., Volion, Ashley et al.

In the field of paediatrics, the concept of normal (ie, typical)—in contrast to different, special, deviant, delayed, or atypical—has imposed a problematic framework within which people view a child with an impairment. This binary perspective oversimplifies a complex, fluid, and dynamic process encompassing physical, behavioural, emotional, cognitive, social, and communicative development. Furthermore, this approach reinforces the notion of a singular normality, diminishing the value of any variation from this assumed (and usually poorly defined and naive) standard, in a way that speaks of ableism—the normative bias that a standard norm exists and anything other than this standard is inferior. Ableism profoundly affects systems, whether they be clinical or medical, educational, or community-based or research-based. The aims of this Personal View are to (1) examine the evolution of disability definitions; (2) challenge the construct of normal in child health; and (3) review identified types of disability. This Personal View explores the literature on ableism in paediatrics from a global perspective, assessing its effect on children, their parents and families, and on the broader community. We offer a modern perspective on disability, embracing the resilience and adaptations that often emerge, while acknowledging challenges. We aim to provide paediatric learners and health-care professionals with opportunities to improve paediatric care through an inclusionary, strengths-based approach to disability that values diverse developmental pathways and challenges rigid normative expectations.