The Year of the Zebra

Screenshot from the introduction video for The Year of the Zebra

What is this initiative?

2023 is the 40th anniversary of the Orphan Drug Act which gave hope to the hundreds of millions of people around the world who are directly affected by rare disorders (also known as “zebras,” because they are less common than horses). Elsevier Health is launching an ambitious initiative called “The Year of the Zebra” to educate millions of current and future healthcare professionals, caregivers, researchers, patients, family members, and the general public about these zebras. We are inviting an exclusive group of organizations and individuals to “adopt” one or more zebras by contributing to the development and distribution of highly engaging and impactful educational content about those rare disorders that will collectively reach millions of people around the world. 

Screenshot of Educational Video
Elsevier
This article ties to SDG 3. This resource, created together by Osmosis and the National Organization for Rare Diseases (NORD), aims to increase the knowledge and awareness about the rare disease Achondroplasia, the most commonly occurring form of skeletal dysplasia that occurs in approximately 1 in 20,000-30,000 live births.
Diagram of Esophageal Atresia & Tracheoesophageal Fistula
Elsevier
This article ties to SDG 3. This resource, created together by Osmosis and the National Organization for Rare Diseases (NORD), aims to increase the knowledge and awareness about the rare birth defect Esophageal Atresia & Tracheoesophageal Fistula. This disease occurs when the esophagus fails to develop correctly, essentially ending in a blind pouch that is commonly connected to the trachea, creating a tracheoesophageal fistula.
Diagram Achalasia
Elsevier
This article ties to SDG 3. This resource, created together by Osmosis and the National Organization for Rare Diseases (NORD), aims to increase the knowledge and awareness about the rare disease Achalasia, which involves damage to the nerves in the esophagus causing the lower esophageal sphincter, a circular muscle at the end of the esophagus, to be unable to relax. The resulting symptoms include difficulty swallowing and chest pain.
Elsevier
This article ties to SDG 3. This resource, created together by Osmosis and the National Organization for Rare Diseases (NORD), aims to increase the knowledge and awareness about the rare disease Langerhans Cell Histiocytosis (LCH), a proliferation of abnormal histiocytes, which are inflammatory immune cells that constantly patrol the body for invaders and can infiltrate multiple body parts including the bones, skin and nervous system.