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Intellectually Impaired People: The Ongoing Battle, 2023, Pages 231-237
Parents’ associations try to improve the fate of their children. The Cystic Fibrosis Foundation (CFF) was established by parents of children with cystic fibrosis when their children’s life expectancy was only a few years. They invested money they had collected in for-profit pharmaceutical companies that they assumed had good chances to develop effective therapies. They had breakthrough success with it, were able to sell the shares of these companies at a great profit, and have now more resources to further promote cystic fibrosis research and care.